Mary Elizabeth’s Story

Mary Elizabeth’s Story


I want Mary Elizabeth to grow into the
best she can eyes ears muscles everything and maybe
you have certainly helped with eyes she has three things going on with her
vision that were diagnosed one was optic nerve hypoplasia and that just meant
that her optic nerves were not developed fully and that is a condition that does
not change she also was diagnosed with C VI which stands for cortical visual
impairment and that just meant that her brain was having a little bit of problem
processing what her eyes were seeing that can be improved and she was also
myopic which means she was nearsighted and had glasses to correct her
nearsightedness I work over at st. John Hospital here in Tulsa the chaplain in
the NICU and Mary Elizabeth was in the NICU she was born at 23 weeks old and
she was in the NICU for six months so you can imagine all the different
illnesses that she had she was a very sick child and she was in DHS custody
and they had no one to take her and so she was just alone she was born in
December and May the doctor said okay this child’s got to have a touch because
she had never been held in five months so every day for an hour I took it out
of my day I went and I held her and just started bonding with her and when they
said we’re looking for a family I just handed my business card to the DHS
worker I said when you’re at last resort cannot find anybody call me I’ll take
her and she did Mary Elizabeth has a fantastic mother
and we all have seen that in observing how they react but she was looking for
ways to make sure that Mary Elizabeth would develop vision she you know she
has some cerebral problems from birth from trauma that limit her body
functions she does unable to reach for things she can’t walk but the one thing
that we are seeing developed is vision where she’s starting to do looking at
objects she’s making choices with her eyes and we’re hoping that this is going
to translate into her being able to communicate by using her eye movements
it started out that she really didn’t attend to anything then it was just a
light so now we’ve got red and yellow colors involved and she’s attending to
sound a little bit more it’s it’s all moving in the right direction
I’ve known Eve you for years and I know the services they provided for people
way beyond the age of three they’ll go on for the rest of her life and I knew
that Angie would need support for Mary Elizabeth’s visual needs for the rest of
her life and new view is the place to go to get that support today I pushed Mary
Elizabeth a little bit I had her trying to look between two objects trying to
find things that are stimulating enough to grab her attention from one to the
other a little bit difficult but we did see that she was changing her gaze
between two different objects hopefully that’s going to translate to some sort
of communication system because if we know that she could change her gaze they
can track that and use it to come up with a response for communication the difference with NewView is, they
offer all these different interdisciplinary team members like Kim
as a as a low vision therapist and then the adaptive technology all these
different things that that give therapeutic help to families. Well, the
first thing that I see in this one little time period that we’ve had her is how
much happier she is she is more engaged with the people she is more engaged with
seeing things she’s a lot happier and less fussy. I think our long-term goal
for her is getting it where she can communicate with others, but it’s gonna
be great to know what type of things entertain her. You know, if we can find
some visually stimulating things for her to do, that’s going to be great for other
development. Because people like Kim and like Dr. Riley and like Dr. Bonner they
that that’s their gift it’s God’s gift gave them and they’re utilizing their
gift to help people. I don’t know where she’s going to end up and if
we quit now we’re not going to find out. So, your money is being well spent
because you’re helping someone to see. and if you’re walking in
the middle of the night and you can’t see,….can you imagine being like that all
day long? So, those donors are helping someone see.

One thought on “Mary Elizabeth’s Story

  • Oh goodness
    This was recommended. I'm an oklahoman and I hope you consider subbing to my channel.
    This is an amazing story

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