Adam Mapani – Uveitis Nurse Specialist role

Adam Mapani – Uveitis Nurse Specialist role


Patients allied healthcare professional colleagues and all of you together in
one room, I’m just going to take you through some of the work and the milestones that we have achieved so far from Moorfields perspective so really I’ll be presenting this on behalf of my colleagues who are at the front of supporting group of patients
diagnosed with Birdshot disease so the summary of my talks is really is going to reflect on
the fact that this is more of a multidisciplinary involvement involving
ophthalmologists, your consultants, rheumatologists, your GPS and uveitis nurse specialists. So from a nursing perspective from the time you are diagnosed with the
disease taking you through the pathway from
diagnosis, investigations, I think there’s every single opportunity to provide
counseling and counselling is the bedrock of nursing when we look at it from
holistic care. So counselling of patients in immunosuppressed is the offering advice
potentially due to the side effects that are associated with the drugs
already alluded from the previous speakers. Disease counselling we also
look at specifying some of the cohort of patients especially on the
immunosuppressant pathway. So from an eye clinic perspective or from what we are currently working on at Moorfields, we do have a consultant rheumatologist working with
us on Tuesday morning, supported with a uveitis nurse specialists currently
undergoing through training in that specific disease pathway process. The
key message is monitoring and multi-specialists working because of the nature of the tests that goes on as part of the treatment so the uveitis nurse specialist in this specific pathway is there to give you that psychological support , information and advice throughout the treatment pathway
There is also recognition that during your consultation or during your visit to the eye clinic they could be some question that could arise once
you’re going home on the train or on reflection so there’s also an
opportunity to have that interaction in form of calling back the helpline or post care management after the clinic visit with the trained specific nurse specialists will be there to offer advice and support its part of your patient care management. This is also a complimentary role between the nurses offering disease counselling and
also colleagues like Mildred Johnson offering drug specific related counselling
so there’s also a lot of interaction with your GPs a lot of interaction with
other MD providers like the talk that we heard from David so the nurse specialist is also the true link or true offer that support in the form of managing a
referral pathway to the different specialist and counselling preparing
patients so at some point when the actual disease gets quiescent or stable they
may be that opportunity for your consultant who is involved with your care to make that clinical judgment and part of the role of the nurse is to sit down, offer
your advise, reassurance what you need to do, especially it could be about
lifestyle, modification of lifestyle management, it could be offering you
support in terms of how to get to the clinics and what sort of other things you can have as part of your care management. And then briefly in conclusion we also look at the
interaction between the nurse specialists within the multidisciplinary team
because there’s quite a lot of different speciality in the specific pathway that
is involved with your care. So these are some of the things in the future that we
could look at, if you have the same nurse allocated in the same clinic and you
get to build a rapport from time to time you visit the clinic or area as part
of a building that rapport you get to know each other to trust each other and if they consulted make the decision to discharge they’ve gone through all the process in relation to
the policy the nurse specialists will give you again that opportunity to sit down
with you ask any further questions you have or what you may need to do if the
disease flare up or sort of information and advice that you might need as part of
that additional support. Thank you so much for listening.

Leave a Reply

Leave a Reply

Your email address will not be published. Required fields are marked *